Angus on transfusion day

Captain Courageous himself

The Bond children

Our three super-heroes

Angus with his mum Jessica

My little hero

The Angus Bond Story

“Our sweet, blonde little boy was born on April 22, 2008 – at 8 weeks he was diagnosed with Diamond Black-Fan Anemia – it opened up a whole new world for our family. Angus, and other children like him, need a chance, a donor, a miracle, a cure. With your help they have a fighting chance to overcome, to survive, to play outside, to grow up………….TO LIVE.”
Jessica Bond - Mother

Like most four-year-old little boys, Angus Bond’s favourite things include toy cars, train tracks and animals. He loves to play outside and has a quirky sense of humour; he is always making his big sister Molly and big brother Ted laugh out loud. But unlike most little boys Angus has to visit the hospital every month to have a life-saving blood transfusion – he suffers from Diamond Black-Fan Anemia, a rare bone marrow failure disorder.

Angus is 4 years old and has already had 49 life saving blood transfusions. By the time he is twenty he will have had more than 250 transfusions which equates to 230 litres of blood. That is the same amount of blood contained in 50 grown men. He is a strong and brave little boy and although he is very small – a symptom of his condition - he is reaching all the milestones that any normal toddler would. This is all due to the kind people who donate blood every 3 months. Without them Angus wouldn’t be here to tell his story.

Angus Bond was born on the 22 April 2008 in Singapore where his family had lived for three years - a healthy, happy and adored little boy. At five weeks he became desperately ill with chronic anemia; he had two blood transfusions within 12 hours and three more before moving to Canada a week later. His father had a new posting in Toronto and the family had no option but to move further away from Australia. After a bone marrow biopsy at eight weeks, Angus was diagnosed with Diamond Black-Fan Anemia (DBA).

Only around 800 people suffer from DBA worldwide. This rare blood condition - where the body does not produce enough red blood cells to transplant oxygen around the body - is caused by a failure within the bone marrow. DBA is mostly a sporadic disease, rather than a hereditary one; it can be life threatening and there is no known cure. Treatment consists of regular blood transfusions, coupled with drugs to remove the build-up of iron in the body caused by the disease. It is a time-consuming and often painful process.

Angus and his family lived in Canada for 12 months, where Angus spent most of his time in and out of hospital. Living so far away from home, without family support, was difficult for the Bonds and in January 2010 they moved home to Adelaide, South Australia. Each month Angus visits the MacGuiness McDermont Clinic at the Women’s and Children’s Hospital to receive life preserving transfusions.

Experts hope that within Angus’ lifetime there will be a cure for DBA. There is the possibility of a Bone Marrow transplant, however, none of his family is a match and this procedure comes with many risks. The family has been told that Angus carries a rare tissue type within his bone marrow, which makes it harder to find a match.

So for now, this courageous little boy will visit the Women’s and Children’s Hospital in Adelaide each month, until a cure is found or a bone marrow transplant becomes an option.